This blog follows my life since being diagnosed with terminal Motor Neurone Disease / ALS on 2nd July 2014 at the age of 36. A music addict, travel & photography enthusiast & gay, when diagnosed I was enjoying life in Sydney Australia. I returned to the UK in June 2015 to be closer to family, have access to further healthcare & support to help me battle this brutal disease. Expect posts about the condition, its progression and any issues as they arise.
What is MND/ALS?
What is MND/ALS?
MND/ALS is characterised by progressive degeneration of the motor nerve cells in the brain and spinal cord. The motor cells (neurones) control the muscles that enable us to move around, speak, breathe, and swallow. With no nerves to activate them, muscles gradually weaken and waste. Symptoms may include muscle weakness and paralysis, as well as impaired speaking, swallowing, and breathing. In most cases, it does not affect intellect, memory or the senses. Progress is relentless and generally rapid, with a life expectancy of between 2 and 5 years from the onset of symptoms. There is no known cause and there is no known cure. See links on the right for further information.
Sunday, 16 August 2015
City2Surf Sydney 2015
Thanks to Carl Austin, my bestie down under in Sydney, for raising A$4,500+ for MND New South Wales on Sunday 9th August.
He completed the race in 58 minutes & 33 seconds which was also a personal best for Carl at City2Surf!
Thanks to all who donated!
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