What is MND/ALS?

What is MND/ALS?
MND/ALS is characterised by progressive degeneration of the motor nerve cells in the brain and spinal cord. The motor cells (neurones) control the muscles that enable us to move around, speak, breathe, and swallow. With no nerves to activate them, muscles gradually weaken and waste. Symptoms may include muscle weakness and paralysis, as well as impaired speaking, swallowing, and breathing. In most cases, it does not affect intellect, memory or the senses. Progress is relentless and generally rapid, with a life expectancy of between 2 and 5 years from the onset of symptoms. There is no known cause and there is no known cure. See links on the right for further information.

Thursday, 28 April 2016


It has been a week now since the unexpected news of Prince's untimely death and I still can't get my head around it. I'm no super fan but, as a child of the 80's, its impossible not to have at least one favourite Prince song, mine being Alphabet Street amongst many others. 

'Sometimes It Snows In April'. One of Princes critically acclaimed masterpieces from the classic 1986 album 'Parade'.

But what is shocking about Prince's death is that unlike Michael Jackson and Whitney Houston, who were in my opinion ticking time bombs of wasted talent, vulnerable and unstable in later years, controlled by the people around them, Prince seemed to be in control of his life , career and legacy. A true artist, mysterious musician and icon who made his own decisions himself rather than be a pop puppet. I guess it is just yet another reminder of our mortality no matter who we are.

Thank U Prince 4 being part of the soundtrack of my life.

If 2016 is my year to move onto pastures new too, judging by the below, it seems like I will be in bloody good company and definitely entertained!

RIP Michael Jackson, the King of Pop
RIP Whitney Houston, the Princess of Pop
RIP Prince, the Prince of Pop
Long Live Madonna, the Queen of Pop

Tuesday, 5 April 2016

12 Months Ago ...

What a difference a year can make! This time last year I was still living in Sydney, Australia, newly medically retired and visiting the UK & Ireland seeing family & friends, and getting my affairs in order for the big reluctant move back to the UK 3 months later, thanks to MND! I would have done ANYTHING to stay in Australia where I have always felt settled and 'at home'!

Since then MND has thrown even more losses my way, I can no longer speak, eat, walk, use my arms, stick my tongue out, whistle, take a photo, write, go on dates, bite my nails, shower myself, put headphones on, wipe my ass, enjoy my favourite foods, shave or cut my own hair, fly on a plane (probably), pick my nose, lie flat (without my NIV), swim, hold my head up, dress myself, use the tv remote ... the list is endless! 

Despite these, MND cannot take away my spirit, my ability to laugh, smile, joke & enjoy every moment as if it was the last!