In one of the most touching stories we've ever printed, @jodydv78 tells all of his brave battle with MND. Via https://t.co/KTWRgsA0xw pic.twitter.com/rpn8C46APg— Gay Times Magazine (@GayTimesMag) September 23, 2016
This blog follows my life since being diagnosed with terminal Motor Neurone Disease / ALS on 2nd July 2014 at the age of 36. A music addict, travel & photography enthusiast & gay, when diagnosed I was enjoying life in Sydney Australia. I returned to the UK in June 2015 to be closer to family, have access to further healthcare & support to help me battle this brutal disease. Expect posts about the condition, its progression and any issues as they arise.
What is MND/ALS?
What is MND/ALS?
MND/ALS is characterised by progressive degeneration of the motor nerve cells in the brain and spinal cord. The motor cells (neurones) control the muscles that enable us to move around, speak, breathe, and swallow. With no nerves to activate them, muscles gradually weaken and waste. Symptoms may include muscle weakness and paralysis, as well as impaired speaking, swallowing, and breathing. In most cases, it does not affect intellect, memory or the senses. Progress is relentless and generally rapid, with a life expectancy of between 2 and 5 years from the onset of symptoms. There is no known cause and there is no known cure. See links on the right for further information.
Friday, 30 September 2016
Gay Times
Very proud to be raising awareness on Motor Neurone Disease specifically in the gay community, which I believe may be a first, by sharing my story over a 4 page article in Gay Times. Thank you to MND Association and Gay Times Magazine for making this all possible. Available digitally and in the shops now.
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My husband was diagnosed with MND ALS (amyotrophic lateral sclerosis) when he was 69 years old 6 years ago. The Rilutek (riluzole) did very little to help him. The medical team did even less. His decline was rapid and devastating. The psychological support from the medical center was non-existent and if it were not for totalcureherbsfoundation. com and the sensitive cure of their herbal formula he would have been not been alive today,there was significant improvement in the first 4 weeks of usage that gave us hope that he will be alive,His doctor put him on riluzole, letting us know there was no cure until we gave try on total cure herbal supplement that cure him totally form this disease after 15 weeks of his usage.there is nothing positive about cure ALS condition except for their herbal treatment .
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