What is MND/ALS?


What is MND/ALS?
MND/ALS is characterised by progressive degeneration of the motor nerve cells in the brain and spinal cord. The motor cells (neurones) control the muscles that enable us to move around, speak, breathe, and swallow. With no nerves to activate them, muscles gradually weaken and waste. Symptoms may include muscle weakness and paralysis, as well as impaired speaking, swallowing, and breathing. In most cases, it does not affect intellect, memory or the senses. Progress is relentless and generally rapid, with a life expectancy of between 2 and 5 years from the onset of symptoms. There is no known cause and there is no known cure. See links on the right for further information.

Wednesday 10 February 2016

IMAGINE

Imagine your favourite song coming on the radio and not being able to sing along? 

 Imagine only being able to smell your favourite foods? 

 Imagine your only form of communication is typing with your eyes? 

 Imagine not having the strength to push the charger cable into your tablet / phone? 

 Imagine being unable to quench your thirst on a hot summers day?

 Imagine the indignity of relying on someone else to shower & dress you everyday? 

 Imagine having to use a machine to help your lungs expand enough? 

 Imagine going to the beach and not being able to lie on the sand or swim in the sea?

 Imagine being three conversations behind by the time you can share your thoughts?

 Imagine living a life of travel & adventure & then suddenly being confined to a wheelchair?

I don't have to imagine any of these things. These are just a selection of realities for me at 38 with Motor Neurone Disease that I used to take for granted. I never imagined anything like this would happen to me. Nobody ever does. I hope that one day soon a cure, or at least treatment, is found so that these scenarios can remain in your imagination. 

 You can help by donating to the MND Association or fundraising at your next marathon or sporting event at http://www.mndassociation.org/get-involved/donations/

 Alternatively you can donate straight to the source of research at the Sheffield Institute for Translational Neuroscience - http://sitran.org/support-us/ 

 In the meantime I will keep fighting & making the most of every single day supported by amazing friends & family

 #MNDWarrior #ALSWarrior #MNDArmy #MotorNeuroneDisease #MND #ALS

 Please Reshare & Help Spread Awareness!
Posted by at
Labels: , , , , , , , , , , , , , , , , , ,

1 comment:

  1. Van Charlotte2 May 2022 at 11:39

    I was diagnosed of ALS/MND in 2020. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then i decided to try alternative measures and began on ALS Formula treatment from Dr James Ehimare herbal centre, It has made a tremendous difference for me contact him via email (jamesherbalformula@gmail.com ). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. Don't hesitate to reach him call/whatsapp +2349057856543 

    ReplyDelete

Subscribe to: Post Comments (Atom)